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WALLS OF SILENCE
SECTION 2 TITLE 2.0 EXPLANATION OF CHIARI MALFORMATION DISABILITY
“Chiari malformation is a complex condition, with varying degrees of severity and potential complications. Each type and individual subject brings unique challenges, and understanding these variations is essential for effective management.”
Chiari Malformation Types and Symptoms: Chiari malformation is classified into three main types, each with distinct characteristics and symptoms.
1. TYPE 1 CHIARI MALFORMATION
Type 1 Chiari malformation typically develops as the skull and brain grow, with symptoms often emerging later in childhood or adulthood. Unlike the congenital forms, this type may not be evident at birth. Classic symptoms include the following:
· Headaches: Often triggered by coughing, sneezing, or straining, headaches are a hallmark symptom.
· Neck Pain and Balance Issues: A person may experience chronic neck pain, dizziness, and trouble maintaining balance.
· Hand Coordination and Sensory Changes: Poor hand coordination, along with numbness and tingling in the extremities, are common.
· Swallowing and Speech Difficulties: Some may struggle with swallowing, which can lead to gagging, choking, and occasionally vomiting. Speech may also be affected, with hoarseness being a notable change.
· Less frequent Severe Symptoms: Individuals may experience symptoms like tinnitus, slow heart rhythm, scoliosis related to spinal cord impairment, or breathing issues such as central sleep apnea. This list doesn’t begin to describe the symptoms that I have due to years of systematic maltreatment abuse and neglect where I was criminally blocked from receiving appropriate or adequate access to healthcare resulting in major damage throughout my body including scoliosis, bone fusion, spinal fluid leaks, nerve damage, hernia, high blood pressure, tooth loss, ghost vision, vertigo, short-term memory loss, diminished executive functioning and cognitive ability, limited mobility and so much more
2. TYPE 2 CHIARI MALFORMATION
Type 2, also known as Arnold-Chiari malformation, is a congenital condition, often diagnosed at birth. This form is more severe than Type 1 and often occurs alongside spina bifida, a spinal cord defect. Symptoms are more pronounced and may include significant physical and neurological impairments.
3. TYPE 3 CHIARI MALFORMATION
The rarest and most severe form, Type 3, also presents at birth. It involves more significant malformations and is associated with life-threatening complications. In Type 3, portions of the cerebellum or brainstem can extend abnormally through an opening in the skull, leading to severe neurological symptoms and physical disabilities. Type 3 requires immediate medical attention and often surgical intervention.
4. COMPLICATIONS OF CHIARI MALFORMATION
Chiari malformation can remain asymptomatic in some cases, but in others, it can progress and lead to serious complications. Common complications include:
· Hydrocephalus: An excess buildup of cerebrospinal fluid (CSF) in the brain, hydrocephalus can cause increased pressure within the skull, leading to cognitive and physical impairments. Treatment typically involves a shunt to divert and drain the fluid.
· Spina Bifida: Chiari malformation Type 2 is frequently associated with spina bifida, particularly myelomeningocele. In this condition, the spinal cord doesn’t fully develop, and part of it may be exposed. Spina bifida can result in paralysis and other significant impairments.
· Syringomyelia: In this condition, a fluid-filled cavity, or syrinx, forms within the spinal column. As the syrinx enlarges, it can press on surrounding nerves, leading to pain, stiffness, and muscle weakness.
· Tethered Cord Syndrome: This occurs when the spinal cord attaches to the spine, causing stretching as a person grows. Tethered cord syndrome can lead to progressive nerve damage, particularly in the lower body, causing pain, weakness, and bladder or bowel dysfunction.
· Risk Factors and Hereditary Links: There is evidence suggesting that Chiari malformation may run in some families, though research is ongoing. Genetic factors may play a role in a person’s susceptibility to this condition, though the specific hereditary mechanisms are still being studied.
5. DIAGNOSIS AND TREATMENT
Diagnosing Chiari malformation typically involves imaging tests, such as MRI or CT scans, which reveal the extent of brain tissue displacement and other structural abnormalities. Once diagnosed, treatment options vary depending on the type and severity of symptoms:
· Observation: For individuals with mild symptoms or an asymptomatic presentation, regular monitoring may be sufficient.
· Medications: Pain relief and management of related symptoms can help improve quality of life.
· Surgery: In cases where symptoms are severe or progressive, decompression surgery may be recommended. This procedure enlarges the opening at the base of the skull, reducing pressure on the brain and restoring normal CSF flow.
6. LIVING WITH CHIARI MALFORMATION
Living with Chiari malformation requires ongoing medical support and lifestyle adaptations. Individuals with this condition may benefit from physical therapy, pain management, and supportive care to address neurological symptoms. With appropriate treatment, many people manage their symptoms effectively and maintain a good quality of life. Chiari malformation is a lifelong condition that can be daunting, yet advances in medical imaging and surgical techniques continue to improve outcomes for those affected.
7.L.A.S and CHIARI MALFORMATION: NO ACCESS TO APPROPRIATE AND ADEQUATE CARE
Millions of times I have relayed that message over the last 21 years. This is what they stole from me. Since spring 2003, I've fought the Minnesota Department of Human Services and local clinics like Allina and Fairview for proper healthcare for my conditions. Crimes have been committed by them and their allies to block my access to care, silence complaints about misconduct, and keep me financially dependent. This ongoing control, I believe, is driven by a fear of what might be revealed about past abuses if I gain health and independence. As someone who was under the HBCS Waiver medical insurance who has still been denied care, I have firsthand knowledge of tactics used to withhold necessary funding for the disabled.
I deserve a judgment from the Minnesota Department of Human Services (DHS) and Housing Authorities that participated in covering up DHS crimes of discrimination, falsified records, fraud, retaliation, neglect and maltreatment of a Vulnerable Adult that makes the best ongoing medical support and supportive lifestyle adaptations possible—at my discretion, in the life that I have left, times three for every living generation of my family that was permanently affected by criminal abuse (sent our lives down completely different paths than our birthright destinies. Change who we are individually and as a family. Injured us and stole our time.)—and however many are born before justice comes.
If my Soulaani brother George Floyd is entitled to 12 million for the 11 minutes he was tortured and his life was ended—may his soul reign in power, then my family deserves 500 million for 21 years of torture and our life paths permanently altered, the permanent destruction of my body and the total changing of destinies for three generations beginning with me while funds were being funneled and I was being tortured to keep quiet.
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